Conference Schedule
| Thursday, June 6, 2019 | ||
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| 8:00 am - 3:00 pm | Optional tours (by reservation) | |
| 1:00 pm | Registration begins | |
| 3:00 | Conference opens / Welcome | Steve Nolt |
| 3:30 - 5:00 | SESSION 1 | |
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A. Seminar
An Introduction to Amish and Plain Anabaptist Groups (Edsel Burdge)
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B. Seminar
One Community's Effort to Control Genetic Disease (Vincent Carson, Erik Puffenberger, and Adam Heaps)
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C. Papers: Conflict and Cooperation in Addressing Health and Safety
Negotiating with Modern Medicine: Insights from Amish Burn and Wound Care (Mark L. Louden)
When the “World’s” Law and Ethics Clash with Amish Religious Freedom: An Exploration, Using Medical Case Studies, of the Nature and Significance of This Tension (Frédérique Green)
A Community Saves Children’s Lives: Making Reflective Safety Vests (Kay Moyer)
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D. Workshop
Minimizing Barriers to Care (Joanne Eshelman, Cynthia Heisey, Lydia Nolt, MaryAnn Robins)
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| 5:15 - 6:30 | Dinner | |
| 7:00 | SESSION 2: KEYNOTE ADDRESS | |
| Ancestral Antecedents of Illness: Opportunities for Assessment and Amelioration | Joseph B. Martin | |
| 8:15 | Reception | |
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Friday, June 7, 2019 |
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| 7:45 - 8:15 am | Continental breakfast | |
| 8:30 - 10:00 | SESSION 3 | |
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A. Papers: Bridging the Gap between Providers and Patients (A)
A Study on Developing Culturally- and Linguistically-Appropriate Cancer Education for Amish and Mennonite Communities in Ohio (Melissa Thomas and Doretta Thomas)
Building Healthcare Bridges: Secrets for Successfully Integrating Evidence-Based Practice for Conservative Anabaptist Patients (Phyllis Myers)
Plain Talk about Health: Linguistic Aspects of Mediation between Amish and Mennonites and Health Care Professionals (Mark L. Louden)
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B. Papers: New Developments in Genetics and Health Research
High Clinical Impact KCNQ1 Mutation Present in 1/40 Amish: Culturally-Appropriate Return of Results from Population Whole Exome Sequencing (WES) (Elizabeth A. Streeten)
Self-Reported Sleep Duration and Pattern in Old Order Amish and Non-Amish Adults (Man [Grace] Zhang, presented by Elizabeth A. Streeten)
A Missense Variant in B4GALT1 Reduces Low-Density Lipoprotein and Fibrinogen (May E. Montasser)
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C. Papers: Assessing Cultures of Well-Being
“Mobile Internet is Worse than the Internet; It Can Destroy our Community”: Old Order Amish and Ultra-Orthodox Women’s Responses to Cell Phone and Smartphone Use (Rivka Neriya-Ben Shahar)
The Dawdihaus: A Noun and a Verb: The Life and Voices of Loved Ones that Extend Generations (Claire Mensack)
Anomie, Egoism, and the Amish: A Durkheimian Examination (Robert Strikwerda)
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D. Workshop
Dealing Effectively with Mental Health (Panel: Karla Campanella, Sarah Elaine Martin, Clair D. Stauffer, and Allen Hoover)
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| 10:00 - 10:30 | Break | |
| 10:30 - 11:45 | SESSION 4: PLENARY ADDRESS | |
| Medicine and the Modern Amish | Martha King | |
| 12:00 - 1:00 pm | Lunch | |
| 1:15 - 2:45 | SESSION 5 | |
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A. Seminar
End of Life Care with the Amish (Panel: Ann Marie Ackerman, Ann Bach,Ellen Liberto, and others from Hospice and Community Care)
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B. Seminar
New Developments at the Clinic for Special Children and the University of Maryland Amish Research Clinic (Erik Puffenberger and Karlla Brigatti; Alan Shuldiner and Susan K. Shaub)
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C. Papers: Asian Perspectives on Amish Community
Similarity in Amish and Japanese Mind and Lifestyle: Zen and Amish (Chiho Oyabu and Kana Oyabu)
"Thematic Exhibition: The World of Amish Quilts: Seeking the Way of Living, Weaving the World" in 2018 at the National Museum of Ethnology (NME) in Osaka and Its Development (Nanami Suzuki)
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D. Workshop
Dealing with Abuse (Robin Boyer and Allen Hoover)
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| 2:45 - 3:15 | Break | |
| 3:15 - 4:45 | SESSION 6 | |
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A. Papers: Bridging the Gap between Providers and Patients (B)
Perceptions about Childhood Vaccinations in the Old Order Amish of Lancaster County, Pennsylvania (Pamela Cooper)
Health Care Provider Understanding of Health Care Beliefs and Preferences in Anabaptist Communities (Dawn Garrett-Wright)
Understood or Misunderstood? How the Amish are Framed in the Literature of Healthcare Ethics (James L. Benedict)
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B. Papers: Patient Agency and Choice in the Realm of Health and Medicine
Toward a Better Understanding of Amish Healthy Living: Associations between the Amish Lifestyle, Immune Profiles, and Protection from Allergic Diseases (Christine Seroogy)
The Choice of Health Care Providers among Old Order Amish in a Pennsylvania Valley (Gretchen Schafft)
Understanding How One Amish Mother and Her Child Experiences “English” Health Care - A Case Study (Judy S. Stavisky)
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C. Papers: Interpreting Contemporary Amish Culture
The Role of Ex-Amish Memoir in Breaking the Culture of Silence on Sensitive Subjects (Sabrina Völz)
From the Inside Out: Reflections of Amish Patterns and Traditions (Saloma Miller Furlong)
Rearview Mirror: Reflections on What Shaped Me and What I Thought I Was Doing (Donald B. Kraybill)
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D. Workshop
Issues in Primary Care (Joel E. Yeager and LuAnne D. Yeager, Heritage Family Health)
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| 5:00 - 6:00 | Dinner | |
| 7:00 | SESSION 7: PLENARY ADDRESS | |
| Understanding the Why: Engaging Amish and Plain Communities in Addressing Health Disparities | Melissa Thomas | |
| 8:30 | Reception | |
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Saturday, June 8, 2019 |
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| 7:45 - 8:15 am | Continental breakfast | |
| 8:30 - 10:00 | SESSION 8 | |
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A. Papers: New Developments in Mental Health
Models of Culturally Appropriate Mental Healthcare in the Context of Amish Culture: Learning from Existing Organizations in Indiana, Ohio, and Pennsylvania (Emily A. Troyer)
Emerging Developments in Mental Health Treatment within the Plain Community (Charles Jantzi)
Genetic Studies of Psychiatric Disturbances in the Old Order Amish (Maja Bućan)
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B. Papers: Culturally Accessible Care for Wisconsin Plain Communities: A Story of a Community-Academic Partnership
Birthing Services and Newborn Care Model for Plain Communities: Experiences from the La Farge Medical Clinic (James DeLine)
Newborn Screening for Wisconsin Plain Communities: Challenges, Barriers, and Strategies to Improve Access and Acceptance (Jessica Scott Schwoerer and Christine Seroogy)
Current Practice and Future Directions for Early, Rapid, and Accessible Screening for Genetic Disorders in Wisconsin Plain Communities: A Model for All Newborns in the Era of Molecular Medicine (Mei Baker)
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C. Papers: Health, Wellness, and Lifestyle in Plain Communities
The Implications of Family Planning on Maternal Health (Rachel Stein)
Assessing Functional Health within the Amish Population- A Pilot Study (Karen L. McCrea and Amy Culbertson)
A Thematic Analysis of Selected Health Promotion Topics in an Old Order Mennonite Community Using the Community Based Participatory Research Model (M. Eve Main)
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D. Workshop
Dealing Effectively with Alternative Medicine (Keith Wright and Janelle M. Zimmerman)
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| 10:00 - 10:30 | Break | |
| 10:30 - noon | SESSION 9: PLENARY ADDRESS | |
| The Amish as Health Care Consumers | Katherine Hempstead | |
| Noon | Conference closes | |
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Posters |
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| A Comprehensive Health Needs Assessment of Two Amish Districts | Karen McCrea | |
| Anticoagulant Risk for Supplements Used in Amish Families with Hemophilia | Angela Kueny | |
| Nutritional Status of Anabaptist Women and Children in Southwestern Ontario | Janis Randall Simpson, et al. | |
| Pathogenicity of Variants in ACMG Clinically Actionable Genes in the Amish | Megan Lynch, et al. | |
| DNA Based Newborn Screening: Establishing a Program for Targeted Mutations in the Amish Population | Sarah Ossler, et al. | |
| Understanding Amish Migrations to New Brunswick, Prince Edward Island, and Manitoba | Gabriel Arsenault | |
Posters will be displayed throughout the conference.
Poster presenters will be available to interpret their research during the Thursday and Friday evening receptions.